> Denied treatment, Russians with rare disorder fight for lives / V000_9TB7T2
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Denied treatment, Russians with rare disorder fight for lives / V000_9TB7T2
Clip ID 2137955
Creator AFP
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h264 | 1920x1080 | 514.27 MB
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Description
In Russia, diagnosed with a rare neuromuscular disorder, 25-year-old Marina Lisovaya needs a costly treatment to stop her condition from getting worse and save her from dying young. But like for many others in Russia with spinal muscular atrophy (SMA), she is fighting for state healthcare providers to pay for the drugs that she needs. IMAGES AND SOUNDBITES