Name: Parents of children with rare genetic condition concerned about recent pharmaceutical delays
Uploaded: 2025-09-22T02:29:33Z
Channel: TEGNA
Description: The Begbies say they don't want Sanfilippo Syndrome to take away happy moments from their daughter, but new regulations have made it hard to receive proper care.

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Parents of children with rare genetic condition concerned about recent pharmaceutical delays

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Description

The Begbies say they don't want Sanfilippo Syndrome to take away happy moments from their daughter, but new regulations have made it hard to receive proper care.

Station

WBIR

Keywords

knoxville health local news

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